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Tuesday, 6 November 2007

While being on dialysis it has been my endeavour to live life as much as possible as a normal human being. This applies not only to performing in business ventures but also in other activities. One of my passions has been trekking. In the beginning it was really tough to go trekking and as a result of the weakness I was not able to trek for more than 3 years. Since I grew up this was the longest phase when I havent trekked. Although I have never trekked continuously for long durations, I consider myself to be quite an experienced trekker when it comes to trekking in the sahyadris the range which extends very near to Mumbai and most of maharashtra.

It restarted during a small meeting of a group of friends at idli house. A small discussion about the monsoons and how beautiful it was to trek during the monsoons with all the natural beauty and greenery at its sublime best. Being a saturday, we were thinking of getaways for spending the sunday. Ideally some place which was not too far off from Mumbai and from where we could return the same evening. We decided on Tungareshwar, not a trek in the purest sense of the word but a nice walk with some enjoyable waterfalls on the way.

We left in the morning by train to Vasai and we met a couple of more members at Vasai station. We reached the place from where the walk started. The beauty of the monsoons has to be seen to be believed and in the rains the route gets even more fascinating.

This being a walk it was ideal location for my first trek in many years. What a great beginning.

The trek culminated in a small temple of Tungareshwar and hence the name. The temple is small but has very positive vibrations and is in the backdrop of a very nice hill.

http://www.imagestation.com/album/pictures.html?id=2089160286

http://picasaweb.google.com/radioidli

some of the pictures that we took are in the above links. Awesome nature it definitely is !!

Thursday, 23 August 2007

Dialysis the process

Dialysis is a process that requires the blood to be drawn out taken to an external filter and injected back into our system. This machine balances the electrolytes in the blood as well as removes the excess fluids retained in the blood stream due to inability to pass urine

Everytime one takes dialysis it is a different experience. In fact, the pain is different every time one takes it. Hence it is an adventure every time one has to go through it. The typical problems that arise are cramps, variations in blood pressure which can be very violent sometimes, rigors, and whole lot of other complications.

That is during the dialysis. Other than this the patients have very subnormal levels of haemoglobin, calcium, and other vital parameters thus making the body very debilitated.

I will try to explain each of the issues faced by patients in detail.

Low blood count: This leads to lot of weakness and is a major impediment in living a normal life. Our simple everyday tasks like climbing staircases, travelling, and other actions oriented activities are difficult to achieve. Any exertion above a certain threshold results in fatigue, breathlessness and the like. This irregularity is managed by giving injections of iron supplements and the human hormone erythropoetein EPO.

Low calcium count: We are hardly aware that the calcium count is also determined by the efficacy of our kidneys. When the kidneys dont function, the calcium count is low and this can result in aching limbs, incidence of cramps, and again fatigue. This is also a contributor to decreased capacity of the patient in conducting action oriented activities. This also leads to a calcium phosphorous imbalance in the body. This is managed by treating the patient with calcium acetate tablets as well as alphacalcidol which is a direct source of calcium to the body.

Diet: One has to maintain a diet to ensure the exact amount of salt required by the body and other restrictions to ensure that the electrolytes dont go out of hand.

This process is required to be undergone regularly for the rest of the life. Hence the following issues arise.

Costs

The costs being recurring are range from around Rs.600 per cycle (inclusive of injections) to Rs.3000 per cycle depending on which class of hospital one is taking the treatment.

For a middle income group person these costs become quite a burden and hence there is a lot of demand for low cost dialysis centres.

Transplant: The alternative to dialysis

In India and in most countries transplant donors necessarily need to be a blood relative of the patient or a spouse. The intention of having this rule is to do away with the rampant organ trade whereby organs were purchased from needy people and used by the ones who could afford to pay. The other option is to go in for a cadaver donation. A person who is brain dead can donate organs as they are still functioning. However, there is a huge and widening gap between demand and supply of cadaver organs.

What is required is a concerted effort to create awareness about cadaver donation as a concept and some kind of government intervention to promote the same. An advertising campaign or a celebrity testimonial could go a long way. Though a lot of awareness has been created about eye donation, not much has been done about donation of other organs, which is a pity.

In a way it suits most of the decision makers. Doctors are happy that they have a continuous flow of patients to the dialysis clinics thus ensuring their bread and butter. The dialysis clinics and hospitals are also happy that the investment that they have made for the machines would be utilised optimally. The real loser is the patient. What is required is patients to come together and unite to break this ice that has been formed and create a way for themselves.

Dialysis and Infection

Dialysis being a process involving the blood of a patient, it is but obvious that the patient undergoing dialysis is prone to infection. This can be avoided by having good systems at the dialysis centre. This includes steps like using gloves, separate gloves for infected patients and uninfected ones, having separate areas to wash the blood soaked equipment for infected and non infected patients and so on and so forth. The incidence of hepatitis C infection is most common. Though centres have separate machines for Hepatitis C positive patients most low cost centres do not have enough resources to handle patients separately. In addition to this the basic precautions are not followed. typically these precautions would include disinfecting hands after treating a positive patient etc. The doctors in charge of the clinic talk a lot about precautions, but then they dont have to suffer. So there is a huge gap between the talk and walking it. In my opinion the doctors have to take responsibility and be held accountable for any negative patient testing positive. Unless this happens, no concrete steps will be taken to avoid transmission of dangerous viruses and as always patients will continue to be the only sufferers.

Hepatitis C is an infection that occurs due to contamination in blood. Hence there is little likelihood of it getting transmitted through anywhere but the dialysis centre. Hence a negative patient normally tests positive only due to negligence of hospital / clinic staff which cant be pinpointed after being tested positive. Once this happens, the patient is asked to be isolated and made to use a separate machine for positive patients. If a slot on the said machine is not available, he / she is asked to look for another dialysis centre......... ironically to stem the transmission of the virus. This is mere hogwash as the real steps should have been taken to avoid transmission in the first place and not after a patient has tested positive. These steps are knee jerk and are aimed at just projecting that something is being done about not transmitting dangerous viruses. What would make sense is for the nephrologists to preside over and establish systems that ensure that viruses are not transmitted. However, what eventually happens is that doctors preside over the mess !!!

These are just small instances of how the patient has to undergo hardships while most doctors,(there are some very nice and efficient doctors as well) , hospital staff and all others make merry at the expense of the gullible patient.

As a result the whole process of dialysis (specially in India) is a huge adventure as far as the patient is concerned. The constraints outnumber the positives and hence everytime is a new experience, a scary experience and a very emotionally draining experience for most patients. We talk about life expectancy of more than 20 years on dialysis abroad. However, in India these 20 year cases are rare and can be counted on our fingers. The life expectancy of most patients in India on dialysis is about 8 - 10 years. The reasons for the same are not really so difficult to infer.

Wednesday, 15 August 2007

Adventure Tourist - the genesis

The dictionary meaning of adventure is as follows

ad·ven·ture [ad-ven-cher] Pronunciation Key - Show IPA Pronunciation noun, verb, -tured, -tur·ing. –noun
1.an exciting or very unusual experience.
2.participation in exciting undertakings or enterprises: the spirit of adventure.
3.a bold, usually risky undertaking; hazardous action of uncertain outcome.
4.a commercial or financial speculation of any kind; venture.
5.Obsolete.
a.peril; danger; risk.
b.chance; fortune; luck.
–verb (used with object)
6.to risk or hazard.
7.to take the chance of; dare.
8.to venture to say or utter: to adventure an opinion.
–verb (used without object)
9.to take the risk involved.
10.to venture; hazard.


This blog is aimed at recording my experiences with myself in continuously setting new standards for myself in all the activities that I undertake.

It is pertinent to mention at this stage that I am a kidney patient and I take dialysis twice a week. Most patients in this state are extremely debilitated and have no strength emotionally as well as physically to continue with normal routine. In this situation, I am attempting to make life as colourful as possible and setting new standards for myself............only for them to be reset again and again.

Tourist : The dictionary meaning of tourist is given as below

tour·ist [toor-ist] Pronunciation Key - Show IPA Pronunciation –noun
1.a person who is traveling, esp. for pleasure.
2.tourist class.
–adverb
3.in tourist-class accommodations, or by tourist-class conveyance: to travel tourist.

Someone who goes through the journey for pleasure. Yes pleasure it is that I am seeking. Finally all that we seek is either pleasure or something related to it. I get that sense of achievement when I attain goals that most normal humans cannot even dream of achieving and I am at least provoked to think in that direction.

In that sense this blog is an attempt to document the attempts that are being done to achieve goals that most humans dither to aim for.

I plan to write about all my activities which help me learn from every person I meet and also share with you aspects of their personalities which have influenced me as well as made a difference in my thinking.

Also incidents and their dispassionate analysis and the learning that can be derived from them would form a part of this adventure.

More in the next post !!!

Wednesday, 13 June 2007

My first post

I am new to blogging as a concept and I started this account only because a lot of my friends have their blogs and one friend that i met on orkut convinced me during a scrap exchange.

Its nice to be having a domain which I can use to express myself in any ways that I feel necessary. Lets hope it does take care of the loneliness that I am subjected to.

Loneliness or not, life goes on at a pace that is rarely set by us. We only have this false belief that we are controlling elements in our neighbourhood. We are making efforts to keep more and more things, persons, and elements in our control. This tendency to keep control can be dangerous.Why do we need to keep things in control.

Are things really under our control....if yes how many factors in our immediate environment are under our direct control......i have always been trying to analyse this and ultimately i am veering around to the view that we dont have anything in control. Whatever happens happens and we happen to be just mute spectators.